Add Jaundice to the Menu
One day I came down to the NICU to see poor Nolan in his little bed, with this bright light shining on him and this weird mask covering his eyes. The nurse said Nolan had some jaundice, which is typical of babies who are born a little early, and the light was called a Bili Light, which was a treatment to help the jaundice along. The light had to stay on, and so did the mask, until they were happy with his tests. Grant had some jaundice too, but not as much as Nolan, because he used the Bili Blanket, which was this funky light blanket that would be the envy of EDM fans worldwide. And he only needed it for like a day. Nolan had his for several days. It was pretty depressing because the mask meant you wouldn’t see his little eyes and it almost made him less human, if that makes sense.
Day after day, we’d come to the NICU and see Nolan under that light. Occasionally they’d give us a short break to hold him or just love on him a little bit, but mostly it was hands-off, talking-only stuff. It sucked. I knew he needed it, but it felt like he was making zero progress. I mean heck, isn’t it enough he had a heart defect? Now he has to be all covered up, just laying there to be poked and prodded. It made me feel awful for him. For possibly one of the first times (and definitely not the last), I wanted so badly just to be able to fix him. I would’ve done anything. Guys are supposed to want to fix things, and here I was helpless. Meanwhile, Grant was just a few feet away and he was able to wear clothes and be held. While Nolan only had our voice…
Posted on October 26, 2013, in NICU and tagged babies, bili light, CHD, congenital heart defect, heart dad, heart parent, HLHS, hypoplastic left heart syndrome, jandice, NICU. Bookmark the permalink. 4 Comments.