Let’s Discuss Surgery
After a couple days of both boys being in the NICU, we were told that we were going to speak with the surgeon. Well we already did that, right? Well yeah, we did meet Dr. Peeler, but this time we’d meet the other surgeon, Dr. Maxey. My first thought was “Ok, what can he tell us that we don’t already know?” but we agreed. Dr. Maxey chose to meet us in the NICU so we could be close to our kids…definitely a nice first impression. He was very kind and personable and pulled up a chair and said, “I’ve cleared up my schedule to be sure I give you all the time you need to have your questions answered.” WOW! That’s pretty special, right?
So Dr. Maxey gave a quick rundown of what HLHS was, which we were pretty good with, and then began to describe the initial surgery, which was called the Norwood Procedure. He was very, VERY clear that the Norwood Procedure is a very serious open-heart surgery. It is intricate and challenging and a baby’s heart is roughly the size of a quarter. A QUARTER. How the heck do they do surgery on that?! Then he said something that absolutely wrecked me: nationally about 20% of kids (1 in 5) do not make it through the Norwood Procedure. Oh my God. BUT, he said, he and Dr. Peeler have a ton of experience on the Norwood and do each Norwood Procedure together. He said their rate of success is 97%. Whew, that’s much better. But…what if Nolan ends up as that tiny 3%? How would I cope? What would I do? Is that even fair?
Dr. Maxey was such a nice guy. He did a great job of reassuring us we were in the best place for Nolan, but still reminded us that this surgery was very serious and could take upwards of 6 hours or more. He said sometimes they won’t be able to close the chest post-surgery due to swelling and that’s ok. He said he had time and asked us if we had any questions. I’m not sure if I even asked him any…honestly I was nervous for my son and just as much nervous for myself because I realized I’d never been so anxious in my life. Surgery was set for the morning of December 17th…7 days after Nolan was born.
I enjoyed meeting Dr. Maxey: he does a great job of being informative and reassuring. He and Dr. Peeler make a great team.
Posted on October 27, 2013, in NICU, surgery and tagged CHD, congenital heart defect, Dr. Maxey, Dr. Peeler, HLHS, hypoplastic left heart syndrome, NICU, Norwood, Norwood Procedure, Sano shunt. Bookmark the permalink. Leave a comment.