One day during the week in January, my wife texted me to let me know they were going to try extubation again. I was hoping this didn’t turn into the chest-closing saga, so I prayed hard that this would work. And it did! He got the tube out of his throat and was on bi-pap for a little bit and did so well, they just put him on a nasal cannula for a tiny bit of oxygen. Success! Chest closed? Check. Breathing tube out? Check. Next up: get the heck outta the hospital!
But, as usual, that would take a little bit of time. Anyways, it was super difficult to concentrate on work because I couldn’t wait to go see Nolan and hold him. I got there and the nurses were happy and so was I. Even the doctors and nurse practitioners were happy with Nolan’s progress. Life was good. The best part: I didn’t have to sit next to Nolan, I got to sit with Nolan.
Life was really good. This is what I waited weeks for. Seeing him without that tube in his mouth that would make his lips look all twisted sucked, but now I could see his little lips and his little nose and even hear him cry. Oh the cries. Who would’ve thought that I’d be so happy to hear a baby cry! So that’s how it would go: I could hold Nolan and talk baseball, tell him my corny jokes, doze off together…whatever. It was just great we were doing it together.
Posted on November 20, 2013, in CVICU and tagged bi-pap, breathing, cannula, CHD, congenital heart defect, CVICU, extubation, HLHS, hypoplastic left heart syndrome. Bookmark the permalink. Leave a comment.