February 2013 brought us great news: after 2 months in the hospital, Nolan would finally be coming home! I believe I was at work that day, so I quickly told my boss then headed down to the hospital with Bekah. There was still a lot to do: Nolan would need a final clearance from all the doctors, we’d have to pack up all his gifts and his scale and his feed pump and IV pole, etc. Someone from the hospital’s pharmacy came up and brought us all the medications they filled for Nolan. It was very busy and very exciting. Those of you who have gone through this know, however, that it’s never ever quick. There’s a lot of waiting…and waiting…and waiting.
Finally it was time: I went to get the van and the whole time I had a spring in my step and I couldn’t stop thanking God that Nolan would finally be coming home. Even though Nolan was small and not completely strong, I was far less nervous bringing him home, I was just so happy.
It wasn’t til I got home, though, that reality sank in: this is all up to us now…there’s no more nurses around, no doctors, none of that…just us, a scale, and a sat reader. Oh boy. We wanted to be sure we did everything right so that Nolan had the best chance of getting to his next surgery. And every day without problems is a step in the right direction.
It was the first time we had all three of our boys together…it took 2 long months, and we had been through so much. But the journey was just getting started. In the meantime, though, it was nice to have our twins together once again…that’s Grant on the left and Nolan on the right:
Posted on January 12, 2014, in Care at Home and tagged CHD, congenital heart defect, discharge, family, HLHS, home, hospital, hypoplastic left heart syndrome, together. Bookmark the permalink. Leave a comment.