Weaning off Meds: the Horrors


Nolan was sent home from the hospital with quite a bit of meds including aspirin, lasix, reflux meds, something for his tummy, and two pain meds: Ativan and Methodone.  We were only instructed to give those meds for a day or two before ceasing them entirely.  And that’s where the ab-so-lute madness began.  What I didn’t know was that apparently weaning off those meds is like putting your whole body through pain.  And boy did Nolan show it.  For like 2 days Nolan did nothing but writhe and scream.  Picking him up didn’t help…putting him down didn’t help…rocking him didn’t help…putting him in his swing didn’t help.  He would cry and cry and cry, and wouldn’t sleep…and neither did we. 

I honestly thought I would lose it…I mean we were getting no sleep, all while trying to learn to incorporate Nolan’s routine into our already crazy routine so we can come up with a brand new routine.  It was exhausting and we both felt like we were at our wit’s end.  But just as quickly as the screaming came on, it went away, just like that.  But dude I gotta tell you, that was the WORST couple days.  I look back on it and just shake my head, I was so scared that everyday would be like that (hint, it wasn’t).  Being a heart parent is definitely hard work: you don’t know what curveballs come your way, and you have to learn to handle them often with a severe lack of sleep. 

So let’s hear from the other heart parents out there: how did you adjust to your baby being home after discharge?

About Chris Perez

My name is Chris aka HLHS Dad: I’m married with 3 sons. I love coffee and Yankees baseball. Be kind to one another.

Posted on January 13, 2014, in Care at Home and tagged , , , , , , , . Bookmark the permalink. Leave a comment.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.

%d bloggers like this: