Weaning off Meds: the Horrors

goingcrazy

Nolan was sent home from the hospital with quite a bit of meds including aspirin, lasix, reflux meds, something for his tummy, and two pain meds: Ativan and Methodone.  We were only instructed to give those meds for a day or two before ceasing them entirely.  And that’s where the ab-so-lute madness began.  What I didn’t know was that apparently weaning off those meds is like putting your whole body through pain.  And boy did Nolan show it.  For like 2 days Nolan did nothing but writhe and scream.  Picking him up didn’t help…putting him down didn’t help…rocking him didn’t help…putting him in his swing didn’t help.  He would cry and cry and cry, and wouldn’t sleep…and neither did we. 

I honestly thought I would lose it…I mean we were getting no sleep, all while trying to learn to incorporate Nolan’s routine into our already crazy routine so we can come up with a brand new routine.  It was exhausting and we both felt like we were at our wit’s end.  But just as quickly as the screaming came on, it went away, just like that.  But dude I gotta tell you, that was the WORST couple days.  I look back on it and just shake my head, I was so scared that everyday would be like that (hint, it wasn’t).  Being a heart parent is definitely hard work: you don’t know what curveballs come your way, and you have to learn to handle them often with a severe lack of sleep. 

So let’s hear from the other heart parents out there: how did you adjust to your baby being home after discharge?

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About Chris Perez

My name is Chris aka HLHS Dad: I’m married with 3 sons. I love photography and the New York Yankees. I’m an admitted pizza snob and amateur balloon animal maker. Every now and then you can catch me being serious…but most of the time I’m quoting random commercials or lines from Pee Wee’s Big Adventure.

Posted on January 13, 2014, in Care at Home and tagged , , , , , , , . Bookmark the permalink. Leave a comment.

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