Nolan Makes the Big Time

In a much earlier post, when Nolan was first moved up to Progressive Care after his Norwood Procedure, I mentioned a group called the Cuddle Crew.  These were volunteers who would come and hold babies when their parents were unavailable, or they would hold the baby to give the parents a bit of a break.  It was a wonderful program and those volunteers gave me such a peace of mind, because I knew someone would be there with him…and they would hold him for HOURS.  They loved that kid.

Well one day we were contacted by one of the Nurse Practitioners on Nolan’s heart team.  She said the media was interested in doing a story about the Cuddle Crew and they also wanted to highlight some families.  She told me that when she asked the volunteers who they wanted in the story, they overwhelmingly said Nolan.  WOW.  Look who’s Mr. Popular.  I remember the nurses telling me that the Cuddle Crew would fight over who would get to hold Nolan…and I thought she was joking.  Apparently, she wasn’t!  So we definitely agreed to the interview and brought both twins to Levine Children’s Hospital. 

There, I got to meet some of these cuddle crew volunteers – Earl and Pam – for the first time ever.  I couldn’t thank them enough…and I told them how much their volunteering meant to me.  After a few minutes I realized Earl & Pam looked reeeeeally familiar.  As we got to talking, I figured it out: I met Earl & Pam just the week before at a Chamber of Commerce event that I was participating in for work.  SMALL WORLD. 

Anyhow, the reporter asked me some questions about the program and what it meant to me and then interviewed Earl and Pam while they wrestled with our crazy twins, who were about as squirmy as could be.  I appreciated the opportunity to thank those volunteers.  The Cuddle Crew began just before Nolan was moved up to Progressive Care, and it was started by that Nurse Practitioner and a Cardiologist, because they realized  that heart babies need more care than the typical child on that floor.  We are so thankful for that!  And it would also prove to be a great opportunity to promote CHD awareness in the community. 

Check out the story and video here:–cuddle-crew–helping-take-care-of-infants

About Chris Perez

My name is Chris aka HLHS Dad: I’m married with 3 sons. I love coffee and Yankees baseball. Be kind to one another.

Posted on February 1, 2014, in Progressive Care, thankfulness and tagged , , , , , , . Bookmark the permalink. Leave a comment.

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