CHD Awareness Week!

chd ribbon

 

February 7-14 is Congenital Heart Defect Awareness week!  This is a great opportunity for heart families everywhere to really share their stories and raise awareness.  Awareness leads to funding, and funding leads to research!

There are a lot of awesome things going on this week, and I’ll be blogging about it as much as I can…I’ll just say you don’t wanna miss it!  So let’s start this party off right…since we live in the Charlotte area, I wrote to the Mayor’s office to ask if he would sign a proclamation declaring it CHD Awareness week in Charlotte.  And guess what came in the mail yesterday:

CHD Week Proc

 

How awesome is that?!  It’s really incredible that not only does Charlotte have an incredible heart team at Levine Children’s Hospital, but that Mayor Cannon supports heart families too!  I plan to bring frame this and present it to Nolan’s heart team this week.  As much as I would love to keep it, I definitely want to share it with all our local heart families!

Now for some facts you need to know about CHDs:

  • CHDs are the most common birth defect
  • 1 in 100 babies will be born with a congenital heart defect
  • 40,000 babies will be born with a CHD this year.  That’s enough to fill Madison Square Garden…TWICE.
  • There is no cure for CHDs
  • CHDs are the leading cause of infant death due to birth defects
  • Despite the prevalence of CHDs, funding for research and treatment remains embarrassingly low

Be informed…then spread the word about CHDs!  Please continue to read the blog this week to learn more about CHDs and find out other cool stuff that’s going on.

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About Chris Perez

My name is Chris aka HLHS Dad: I’m married with 3 sons. I love photography and the New York Yankees. I’m an admitted pizza snob and amateur balloon animal maker. Every now and then you can catch me being serious…but most of the time I’m quoting random commercials or lines from Pee Wee’s Big Adventure.

Posted on February 7, 2014, in awareness and tagged , , , , , , . Bookmark the permalink. 1 Comment.

  1. I am wondering if you could let me know where you got the congenital heart disease ribbon? I would like approval to use it. Thanks.

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