When I went to the Camp Luck Annual Symposium, one of the coolest sessions they had was the Heart Sibling Panel.  I was particularly interested in this since, well, Nolan has 2 other brothers…not to mention I wanted to get a glimpse into how siblings feel through the heart journey. 

I gotta say, I was impressed.  No, I was blown away by these kids.  First of all, it takes a lot to get in front of a room of people and talk about anything.  I’m pretty comfortable with public speaking, but it’s not for everyone, and sometimes it takes a lot of courage.  Not only that, they had to open up and talk about what it was like to be a heart sibling.  To be honest, I expected them to talk about how they’re sometimes jealous of the attention the other sibling gets or how they are scared of their sibling’s CHD.  Boy was I wrong.  They opened up about how much they treat their sibling like a normal kid, how much they look out for their sibling, and how much they really, truly love their sibling.  It was touching, it was emotional, and you could tell the kids meant it. 

I went away from that hoping against hope that Nolan’s brothers – Grant and Hudson – would become just as well-adjusted, polite, and caring as the kids on the Sibling Panel.  Seriously.  I mean I expect my house to be full of 3 boys destroying everything, farting, and arguing with each other…but at the end of the day, I want them to take care of one another.  I want them to play nice, to include each other in things, and look out. 

I think Hudson is going to make a great big brother and I think Grant will always look out for his twin (that is, when he stops trying to take his toys all the time).  The next several years will be mighty interesting, as we have to teach Nolan about his CHD but also Grant and Hudson as well.  Hudson knows Nolan has a special heart, but eventually I want him to understand it too.  It’s going to be interesting to juggle all their individual needs and school and activities and church, etc.  Whew.  In the meantime, though, I just love it when they place nice:



So tell me, fellow heart parents: if your heart baby has siblings, how do they handle it?  What tips and tricks have you used successfully?

About Chris Perez

My name is Chris aka HLHS Dad: I’m married with 3 sons. I love coffee and Yankees baseball. Be kind to one another.

Posted on March 17, 2014, in family and tagged , , , , , , . Bookmark the permalink. Leave a comment.

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.

%d bloggers like this: