HLHS Dad on the Radio!

Radio Grandma Meme


Last week I had a really awesome opportunity to share my experiences as a heart dad on a very special internet radio show called Heart to Heart with Anna (http://annamariejaworski.com/).  Anna Jaworski is a heart mom herself and does an INCREDIBLE job of finding weekly topics that can help and educate heart families and healthy families alike.  I’m serious, she covers some great topics, including sports for boys with CHDs, how CHDs affect parents’ relationships, etc.  Really good stuff.  I was honored to participate in the show titled “Working vs Stay at Home Dads.”  You can listen at any time at this link:


I’m not going try not to spoil the conversation because I want you to listen to it and the great viewpoints brought by the other dad on the show, Michael.  I will say that I’m really grateful for people like Anna and Michael, who take the time to share their experiences with others.  Once I went back to work in the middle of Nolan’s Norwood recovery, it was very difficult to remain focused, especially since the way ahead seemed to unclear.  It was often during this time, on lunch breaks, I would scour the internet for stories, thoughts, ideas…anything that would give me a sense of hope that everything was going to be a-ok for Nolan.  Fast-forward to now and I get the privilege of writing this blog as a way to help others, and I couldn’t have done it without those heart parents who paved the way.

There’s lots of great resources out there…positive resources, and I encourage you to connect with other heart families.  It’s amazing the amount of support you can get…and hey, I’m always available to help too!  I don’t have it all figured out: I don’t pretend to.  What I can do, however, is continue to be honest and share what happens with us and Nolan.  Hopefully someone will find hope out there just like I did.

To the stay at home heart parents out there: you guys are doing an amazing job.  I know the days often blur together, you feel exhausted, and you feel like you’re accomplishing nothing….but please keep it up.  You get to spend some special time with your little ones and it’s truly a blessing.  Your impact will be seen for years and years.

And for the working parents: you keep it up too.  Keep providing, keep doing the best you can, and remember to shut work off once you get home so your family gets all of you.  I know sometimes it’s hard to miss cardiology appointments and the like because you have work, and sometimes you want to stay home and hold your heart warrior just a little while longer.  Your efforts aren’t in vain, though: you’re working to pay for those life-saving doctor visits, and everything you do, you do to keep your family warm and safe.

Keep it up, heart parents…you’re the best sidekick a heart hero can have!

About Chris Perez

My name is Chris aka HLHS Dad: I’m married with 3 sons. I love coffee and Yankees baseball. Be kind to one another.

Posted on August 4, 2014, in awareness and tagged , , , , , . Bookmark the permalink. 3 Comments.

  1. Thank you. Some times I just feel like I can’t do this any more. Work full time on an office full of women 2 of whom make me feel miserable. Buy when I come home and see my heart warriors face and his healthy older sister it makes everything worth it. Thank you for everything on this blog. We are post BDG and going back and forth with an ng tube. We are going to avoid the g button route. Or little man is 6 months old and just finished a bottle of 130 mls. A goal we’ve been trying to reach pre BDG. We’ve been home for about a month and doing well. You’re blog has really been wonderful and my husband keeps up with it almost daily, if not weekly. We live in Amarillo Texas and had to be air lifted to fort worth Texas which is 6 hours away. We were diagnosed on day 2 of life and had the Norwood done at day 5. You guys ate so lucky to have a great children’s hospital where you live. Our hospital both in fort worth (cook children’s) and in Amarillo ( BSA is nationally accredited) were amazing. I doubt 2 months away from my daughter who was only 12 months old when my son was born. I’m rambling, sorry. It’s 240am and I’m writing this after a full days work and a little nap between 4 hour feeds. Just wanted to say keep up the great work and good luck with everything. God bless you and your family.

    • Hey Stephanie, thanks so much for your very kind words: I’m glad people are reading the blog and that all my babbling is sometimes helpful 🙂 It means a lot to hear that. I’m wishing the best for your lil’ man: I know he’s going to continue to do great! I know this stage is hard: lack of sleep, lots of stress, etc., but I promise you that it’ll slowly get smoother. It is, without a doubt, a marathon not a sprint!

  1. Pingback: The HLHS Dad is BACK on the radio! | Half Heart. Whole Life.

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