Happy Heart Day, Nolan!

On this day two years ago, Nolan went in for his first major surgery – the Norwood Procedure.  I remember the absolute terror I was in the day before and every hour the day of as we received updates in the surgical waiting room.  I remember seeing my little boy hooked up to all those machines and the nurses moving constantly to check him and give him meds.  It was surreal.  Looking back on it, it’s still pretty surreal.  His recovery was long and hard, with lots of ups and downs…and he fought like a champ.

He continues to fight like a champ, as you well know.  I mean look at him now:

NolanHeartDay2014

There’s a whole lotta fight in that boy…he’s my hero!

I’m so glad to be able to share Nolan’s story on this blog…I’m a big believer that sharing our stories not only helps others but helps us continually heal.   I encourage you, Heart Parents, to share your story however you can.  Some of you will blog, some of you are on Facebook, some of you are part of awareness groups.  Some of you are uncomfortable sharing, and that’s ok…maybe get a notebook and just write it down.  You don’t have to share it with someone but yourself, and it will feel better to get it down on paper.

What a journey this has been and will continue to be…I can’t wait to continue on this adventure with you, big guy.  Happy heart day!!!

Advertisements

About Chris Perez

My name is Chris aka HLHS Dad: I’m married with 3 sons. I love photography and the New York Yankees. I’m an admitted pizza snob and amateur balloon animal maker. Every now and then you can catch me being serious…but most of the time I’m quoting random commercials or lines from Pee Wee’s Big Adventure.

Posted on December 17, 2014, in family, thankfulness and tagged , , , , , . Bookmark the permalink. 2 Comments.

  1. Good luck, and many happy, healthy days ahead to you and yours!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: