What’s the HLHS Dad Up to for Heart Month?
Hey friends, I hope you are all enjoying a superb new year so far! It continues to be a good one for us! So February is right around the corner and you know that means Congenital Heart Defect Awareness Week (7th-14th) and Heart Months as a whole. Last year was a blast as I got to do the #32for32 Project and this year there’s a lot of good stuff going on too:
Camp Luck Conference
On February 7th I will be participating in the 5th annual Camp Luck Conference! This is an all-day, interactive event here in Charlotte where we’ll talk about the CHD Program at Levine Children’s Hospital, sports for heart kids, dental work for heart kids, yoga/relaxation, transplants, heart mom/dad-related subjects…it’s going to be awesome. And I am also very honored to add that I’ve been added as a guest speaker as well….ohhhh if they only knew what was coming! I kid, I kid…it’s gonna be great and I’m looking forward to connecting with other heart families and caregivers. I will promise that we’ll laugh and there will definitely be memes involved. If you’re in the area and want to attend the conference you still have some time! Oh, and it’s FREE! And for the college kid in you, that includes free breakfast and lunch…WHAT? So what are you waiting for? Sign up now: http://www.campluck.com/news-and-events/2015/2/7/5th-annual-camp-luck-conference
The HLHS Dad Goes to Washington
So part of the reason I started this blog was to connect with other heart dads (and moms too) and to hopefully play a role in making a better world for Nolan and his fellow heart warriors. I’ve been blessed with the chance to talk to many people about this, including fellow heart parents, medical professionals, the media, etc. This time I get to take Nolan’s story to the next level: on February 25-26 I have the amazing opportunity to participate in the Congenital Heart Legislative Conference in Washington DC! Thanks to an generous opportunity from the Pediatric Congenital Heart Association I will join up with other heart families to advocate for more CHD research and funding on Capitol Hill. I will get the chance to share a small portion of Nolan’s journey with my member of Congress and hope to inspire some change. It is going to be a whirlwind 2 days but man I am SO excited….I plan to pack my red bow tie and my blue shoes to represent CHD Awareness colors on Capitol Hill and make sure everyone who will listen hears about our heart warriors!
I’d love to know what my readers are doing for CHD Awareness Week and Heart Month: please share in the comments!
Posted on January 28, 2015, in awareness and tagged #CHDaware, Camp Luck, Camp Luck Conference, CHD, CHD Advocacy, CHD Awareness Week, congenital heart defect, Congenital Heart Defect Awareness Week, Congenital Heart Legislative Conference, Heart Month, HLHS, hypoplastic left heart syndrome, Levine Children's Hospital, Pediatric Congenital Heart Association. Bookmark the permalink. Leave a comment.