Imagine planning a vacation of a lifetime to Hawaii. You scour Trip Advisor looking for great places to eat, you pack your shorts and flip flops, and maybe you even take surfing lessons. On your flight you decide to catch a snooze and when you wake up, you’re not in Hawaii…instead you’re in Finland. You’ve got the wrong clothes, the wrong guidebook, and you don’t even know the language. Oh and to add to it: you can’t go back.
This is what it’s like to find out you have a child with a Congenital Heart Defect. Some of you who are here have been in “Finland” for some time. Some of you are just finding out you’re about to land here. Wherever you are in that journey, just know that the best way to survive is to build relationships.
My name is Chris – aka the HLHS Dad – and I’m on this journey with you. I live with my wife and 3 kids just outside Charlotte, NC. When I’m not blogging or advocating for CHD research, I’m making memories with my kids, enjoying music, obsessing about coffee, and watching New York Yankees baseball.
Want to know one of my favorite (and most popular) blog posts? Enjoy a good laugh and check out Heart Parent Bingo: https://hlhsdad.wordpress.com/2014/10/13/sometimes-you-just-need-a-laugh/
Nolan and his twin brother were born in December 2012. He was diagnosed with HLHS in utero and had his first open-heart surgery at 7 days old. His second heart surgery was at 7 months old. He undergoes quite a bit of physical, occupational, speech, and feeding therapy, but he is one of the funniest, sweetest little nuggets you will ever meet. Not a day goes by where I’m not amazed at how far he’s come: he’s my hero and an inspiration!
Be Nolan’s fan: http://www.facebook.com/SupportTeamNolan