Resources

Resources
Check out some friends who also provide some fantastic information and support for heart families.  100% HLHS Dad approved!

Camp Luck
An awesome program in the Charlotte area that provides support and education to heart families as well as holding a medically supervised camp for CHD kids

Congenital Heart Center at Levine Children’s Hospital
This is where Nolan receives all his care.  They are AMAZING and have been ranked by US News and World Report as one of the best Children’s Hospitals for Heart!

Pediatric Congenital Heart Association
A tremendous voice for the pediatric CHD population, with a focus on advocacy, education, and research.  I am a guest blogger for PCHA, so be sure to visit all of their great blog posts

Sisters by Heart
The Heart Mom counterpart to what I’m trying to do here…except they’re WAY better at it.  A fantastic organization and great resource for HLHS Moms (and Dads can sneak on there too)

Mended Little Hearts
A really great program that works nationally and in communities to support children with congenital heart defects and their families. They provide volunteers to do in-hospital visits and assist with education and awareness initiatives.

National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC)
This group is a collaborative consisting of Cardiology care teams, patients, and families with the goal of improving clinical outcomes for children with congenital heart defects.  Really great research surrounding quality clinical work for our kids!
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