Welcome Dads (and anyone else)!
Thanks for being here. I’m sure you’re wondering why I started this blog. Good question: I wanted to share the story of my son Nolan’s journey with Hypoplastic Left Heart Syndrome. Mainly I wanted to provide a place to share my experience with other dads. It’ll be If you’re found this blog because you found out your child has HLHS or will be born with HLHS, you’re very welcome here. My goal for this blog is to be as honest as possible about my experiences so far: the sad, the fun, the scary, the happy, and the confusing. I understand that guys see things and process things differently, so feel free to comment on any of my posts or send me a message with any questions you have.
I will tell you this: no dad is “too manly” for a child’s HLHS diagnosis. It WILL break you, Drago-style. THIS is where you learn to be tough: when you watch your helpless child being tough.
I want to spread the word about Hypoplastic Left Heart Syndrome: to teach people about it, push for more research, and fight for better care everywhere. The biggest help is having someone to talk to, so if you’re a Dad – or Mom – and you have questions, I’m here to help!