Welcome

Welcome

Welcome Dads (and anyone else)!

Thanks for being here. I’m sure you’re wondering why I started this blog. Good question: I wanted to share the story of my son Nolan’s journey with Hypoplastic Left Heart Syndrome. Mainly I wanted to provide a place to share my experience with other dads.  It’ll be If you’re found this blog because you found out your child has HLHS or will be born with HLHS, you’re very welcome here. My goal for this blog is to be as honest as possible about my experiences so far: the sad, the fun, the scary, the happy, and the confusing. I understand that guys see things and process things differently, so feel free to comment on any of my posts or send me a message with any questions you have.

I will tell you this: no dad is “too manly” for a child’s HLHS diagnosis. It WILL break you, Drago-style. THIS is where you learn to be tough: when you watch your helpless child being tough.

I want to spread the word about Hypoplastic Left Heart Syndrome: to teach people about it, push for more research, and fight for better care everywhere. The biggest help is having someone to talk to, so if you’re a Dad – or Mom – and you have questions, I’m here to help!

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  1. Hello I’m very happy to see the child improves my name to Latouf Hattab from Syria, I have one child, named Sham was born with several kaleidoscope in the heart of them a reflection of the arteries and the small right ventricle size and narrow tricuspid valve, thank God, it was the work of a reflection of the arteries TGA process and Glenn and now is in good health I have some questions. can you help me and answer them
    Thank
    EMAIL: HATTAB-1986-1@HOTMAIL.COM
    PHONE:00966582022355

  2. HI Chris ,,,
    i reply your email , i hope you received it

  3. Falyn Cranston

    Hi Chris! I’ve just stumbled across your blog, all the way down in New Zealand, when searching for a simple explanation of the bidirectional Glenn procedure.

    I’m a mum to 10-week-old twin boys, one of which has HLHS and had his norwood procedure at six days of age.

    I’m really interested to read through your posts and see what you and your family have been through since Nolan’s diagnosis. Not only is it hard to connect with other HLHS families here as there are so few, but to find another family with twins and HLHS is rare indeed!

    Anyway I just wanted to leave a note to say I love the posts I’ve read so far and look forward to reading more. I’ll make sure I send a link to my husband too!

    • Hi Falyn! I’m so glad you stumbled across this blog. I’ve actually been noticing lots of twin families in the HLHS world and I hope your boys are doing well. Please don’t hesitate to reach out to me if you have any questions. I’m always excited to hear from readers in other countries!

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