What is HLHS?
You’re here, you want the facts. Read my HLHS write-up here:
Surgical Treatment for HLHS Comes in 3 Stages:
- Norwood Procedure (roughly 7 days old)
- Glenn Procedure (roughly 6 months old)
- Fontan Procedure (roughly 3 years old)
Prior to the early 1980’s, HLHS was 100% fatal until Dr. Norwood from Philadelphia Children’s Hospital began successful surgeries. Today the survival rate for kids with HLHS is much higher and innovations are coming down the line as more research is conducted. Kids aren’t just surviving, they’re thriving and more HLHS kids are living longer than ever before!
Still, there remains challenges:
- What are the causes of HLHS and other CHDs? We still don’t know, but we’re learning more and more.
- Medical teams continue to improve their treatment and care of HLHS kids.
- As CHD warriors grow up, we don’t know much about CHDs in adulthood, so a lot is being done to study Adult CHD patients. Advocacy groups are pushing for funding to support the CDC, which is working to track CHD data across the live span, so we know a little better what to expect in adulthood.